Treatment #2 of Tysabri

Been a while since I've posted and I apologize with all the sincerity in my heart. I traveled throughout the holidays. I spent Christmas at my sister's house in TN.  Then, we shot back South to Eastern AL for only one night and headed West the next day to Western AL.  All that traveling with a wheelchair is a pain in the rear, but it is doable. I'll just say make sure you stretch throughout the journey or you'll end up all robotic with your movements from the waist down.

I tried SO hard to ring in the New Year, but staying up past ten in the evening is becoming more of a challenge as I get older and as my MS progresses. It's taking longer for my body to readjust and re-readjust.  (It's like midnight and I'm typing.) I received my second dose of Tysabri a few days ago. I have some strength back which I believe is what came after the first dose.

I have been furniture surfing or cruising like my nine month old niece.  Top (my hubby) has rearranged the furniture in the living room, so I can just cruise around the house by holding onto the furniture throughout the house.  I'll have to post some pics soon of all the mods we've done since the MS paralysis struck me in June/July 2009.  I can stand (not totally still, I sway) and move around if the furniture/walls/etc. are set up right.  I walk like a drunk.  It's more like a staggering drunk who has had WAY too many...but I'll take it over  where I was before.

I've  noticed that some of the invisible symptoms of MS rear its ugly heads towards the end of the 28 days. (I take Tysabri once every 28 days, and yes, I have noticed it is just like a menstral cycle.  hahahaha)

OH before I hit the hay and sign off, I have to list my New Year's Resolutions.

Resolution #1. To walk without assistance. (This one is definitely a given resolution.)  (I put too much weight on my arms when I use the walker and that's not helping my legs or core to help me balance myself upright; hence, the without assistance part.)

Resolution #2. Focus more on my quality of life and teach my family that the quality is the most important thing ever.

Resolution #3. Be more aware of the "invisible" MS symptoms and cover my mouth to prevent MS vomit from coming out and hurting my family members with horrible the things that the MS tries to make me say. They wonder why I'm so quiet sometimes...sigh...

Resolution #4. I really need to have more family fun with Nerf and Doc (my sons).  I don't want them to think I'm a square and cannot be fun when I'm sick.

Resolution #5. Help Top get back to where the rest of us are. He's missed so much throughout the past three deployments and he's still adjusting and learning, I reckon.

Goodnight all. I will try to post more, but if I do not get to it, just know that I'm working on walking.