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Friday, November 12, 2010

The date is set.

The date is set for the consultation and possible infusion on December 6th.  I have to go through an interrogation just for the doctor to deem me ready for it, I reckon.  (Hence, the "possible" part.) I'm ready for it.  I was ready, like, last week to start it.  I have to call my peeps at the Army hospital and get a referral set up, so I can see said doctor.  Luckily, I have a case manager who is the awesome of all that is awesome! She has been there since I was released from the rehabilitation hospital.

My legs aren't doing so good right, now. It's like since I had to stop taking the Rebif, the MS is now running off-leash like a wild flipping monkey. In. My. Brain. doing all the damage it can. *sigh*  Oh well, I do know if junk/symptoms get worse, I'm calling the neurologist.  The junk has been increasing in intensity over the past two weeks.  I'm trying really hard to hold off on calling the neuro. A "wait 'n watch" type of thing, (which may not be the best idea) but I do not want to go in only to delay my meds any longer than what I have to, if that makes any sense.

Cognitively, I'm slipping in the speech area.  Stuttering mainly, and using the wrong word for another word.  I wonder if I'll have to go through more physical therapy and possibly speech therapy after all this is said and done.  I have hopes for this Tysabri.

1. I hope it kicks the paralysis out for GOOD.
2. I hope it puts the MS back into the remission corner.
3. I hope to walk without holding onto the furniture, walls, and the Earth for dear life anymore.
4. I hope it kills some of the invisible symptoms that I do have.
5. I hope the fatigue goes away.
6. I hope my strength returns.
7. I hope my energy levels return to somewhat normal levels.
8. I hope to be able to take care of myself 100% and my kids, too.
9. I hope my legs and body have normal sensations in them again. (When I touch something, I want to be able to feel the texture.)
10. I hope to have all my strength back, so I can physically throw my wheelchair into the dumpster.

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